Working in partnership with local hospitals, respite centres and specialist services, we’re funding projects which focus on improving children’s physical and emotional well-being, while providing additional support services for parents and carers.
Here you can find out a little bit more about some of the projects in Sussex that we’re currently funding…
Physio equipment for the Alex
As the official fundraising arm of the Royal Alexandra Children’s Hospital (the Alex) in Brighton, we raise money for life-saving and cutting-edge medical equipment as well as providing funding for therapies and services. As part of our ongoing commitment to the Alex, we’re funding equipment for the physiotherapy department to help improve the quality, comfort and enjoyment of the therapy care they offer.
The physio department at the Alex already see hundreds of outpatients every year and the demand on physiotherapists is high. The equipment we aim to purchase, such as postural items, will increase the number of children who can be treated on site, decrease waiting times, improve staff efficiency, and help reduce the pain and discomfort of young patients.
Defibrillators for the Maternity Ward at RSCH
We’ve pledged our support for the Maternity Ward at the Royal Sussex County Hospital in Brighton by funding new cardiac defibrillators. The ward provides maternity care to approximately 6,000 new mums each year so having this updated equipment available is highly important. A defibrillator is needed for someone who is in cardiac arrest and for every minute it takes for the equipment to reach a patient and deliver a shock, their chances of survival is reduced by up to 10%.
Cardiac arrest in pregnancy and during birth fortunately is rare but does occur in 1 in every 12,000 admissions. Cardiac disease is the number one cause of maternal mortality and high-quality CPR is the primary component which contributes to the survival of a patient from cardiac arrest. Funding from charitable organisations such as Rockinghorse helps bridge the funding gap to ensure that equipment such as defibrillators are replaced sooner than would usually be possible by the NHS.
Diabetes equipment for the Alex
The Children and Young Person’s Diabetes Team at the Royal Alexandra Children’s Hospital cares for and supports over 200 young patients with type 1 diabetes. We’ve previously funded glucose monitoring systems and more recently, replacement transmitters for the devices. As part of our ongoing support of the diabetes team, we’re funding special cooling wallets for insulin storage, as well as glucose kits and food weighing scales.
Approximately 40 children are newly diagnosed with type 1 diabetes each year and referred to the Alex for treatment. The items we’re funding will mean that demand is met, and young patients will be equipped with the necessary tools to help them manage their blood sugar levels effectively and reduce the risk of unplanned hospital admissions.
Therapeutic Horse Riding at Chailey
Chailey Heritage Foundation is a pioneering charity in East Sussex, dedicated to enriching the lives of young people with complex physical disabilities and health needs. Chailey creates possibilities for children and young people with complex disabilities, allowing them to access and experience things which they wouldn’t be able to do on their own. Services provided include a special school, residential facilities, transitioning services, a therapeutic care farm and therapeutic horse riding.
In 2017 during our 50th anniversary year, we provided £50,000 of funding to Chailey for the D.R.E.A.M. Centre Appeal – a huge all-weather indoor activity centre where children and young people can take part in sport related activities. This year, we are pledging our support to Chailey once again, by funding their specialist therapeutic horse-riding programme.
The aim of the project is to provide an educational and fun activity for the young people at Chailey. Using the movement of the horse, they are able to integrate physical activities and therapy into young people’s day in a unique way. The programme can support a wide spectrum of children with complex physical disabilities and health needs.
26 young people from the school are currently able to ride regularly, with more who are keen to start, and sessions are in high demand. The additional funding we’re providing will mean that Chailey can run extra sessions to offer therapeutic riding to more pupils.
The Rockinghorse Activities Programme at Chalkhill in 2019
We’re supporting Heads on and the Sussex Partnership NHS Foundation Trust by funding the annual Rockinghorse Activities Programme for young people at Chalkhill Child and Adolescent Mental Health Unit. Based in Haywards Heath, Chalkhill is Sussex’s only mental health inpatient unit for children and young people with serious mental health conditions.
Since 2015, we’ve funded the programme for young people to benefit from activities-based projects on and off site as part of their treatment for acute mental health disorders and emotional difficulties, such as depression, eating disorders and psychosis.
We have visited Chalkhill many times and are always blown away by the dedication and support of the staff. Our most recent visit was in March when we were joined by one of our major donors to see first-hand how their funds are making a huge difference.
Nik Mansfield, Matron at Chalkhill, provided us with some wonderful feedback, she said: “The Rockinghorse Activities Programme has made such a difference to the support we are able to give to the young people that we work with, and really compliments the clinical work and education programme that we provide.
“The activities are varied, ranging from graffiti workshops to professional cup-cake decorating. We also have an enrichment programme which is available for the young people who are able to go off-site, which includes activities such as animal care and rock climbing.
“Rockinghorse’s funding has also helped us to buy self-soothe and distraction items to give young people something physical that they can use to reduce their distress and be part of helping to prevent them from self-harming. One of the most recent items they have funded is weighted stuffed animal toys which young people can place on their lap. Each toy applies calming pressure helping to provide comfort, reduce excessive fidgeting and support improved focus and concentration.
“We are so grateful to Rockinghorse for the support they have given and continue to give us here at Chalkhill. Many of the young people we work with are inpatients who aren’t yet well enough to go home for periods of leave. Rockinghorse’s generous contributions make such a difference to the experience that we are able to give them, helping to provide the therapeutic benefit of meaningful and enjoyable activities.”
Chalkhill Activity Days
In addition to the activities programme mentioned above, this year we’ve also pledged to provide funding to Chalkhill specifically for activity days in a woodland setting. This project aims to bring together 13-20-year-olds with severe mental health difficulties in a supported environment, so that they can learn a range of wood craft skills at an outdoor site in Lewes.
The aim of the project is to bring out individual strengths, encourage self-confidence and inspire young patients to feel a sense of purpose and belonging. Key to the young people’s recovery is building positive self-image through involvement and engagement with new things – many of which we take for granted – to help them in their recovery journey.
In six months of the project, it is hoped that 72 young people can be supported in dealing with the physical or mental challenge they face. Their severe mental health challenges can lead to behaviours such as avoidance of social contact and falling into self-defeating mindsets. The project will enable patients to participate in an outdoor experience in order to increase their mental health, well-being and social network.
Yoga project at the Alex
As the official fundraising arm of the Royal Alexandra Children’s Hospital (the Alex) in Brighton, we raise money for life-saving and cutting-edge medical equipment as well as providing funding for therapies and services. As part of our ongoing commitment to the Alex, we’re funding a Yoga Project to offer weekly sessions to young people with chronic medical conditions.
The regular yoga sessions will actively engage young people aged 12-18-years-old in developing their resources and skills in self-care, managing anxiety and stress in relation to their medical condition. The sessions have been developed in consultation with young patients and a range of professionals so that it can meet the specific needs of participants.
Initial feedback shows that the yoga sessions are an effective way to increase physical activity, gain strength, flexibility and balance. The sessions have also proven to help with stress and anxiety, leaving young patients to feel supported and more resilient. Due to the complexity of the medical conditions of some of the young patients, a trauma sensitive yoga approach has been developed.
Kangaroos Club and Holiday Playscheme
Kangaroos is a charity based in Mid Sussex that was founded in 1994. It provides a range of fun, inclusive social and leisure activities in the local community for children and young adults with learning disabilities as well as additional physical, sensory, medical and behavioural difficulties. The charity provides activities and social opportunities so that children and young people can fulfil their emotional, social, cognitive and physical needs.
We’ve pledged to support Kangaroos by providing funding for the PALS (Play, Activities, Laughter and Support) Saturday Club and Holiday Playscheme. The PALS project runs throughout the year and offers a range of activities to children aged 6 to 12 years-old with severe learning disabilities.
The majority of children with learning disabilities are unable to access mainstream activities and do not usually get opportunities to spend time with their friends outside school. PALS provides a social and recreational opportunity in a safe and structured environment, supported by experienced, qualified staff and young volunteers,
Activities vary from days at Kangaroos as well as trips to a wide range of venues, and they also offer overnight stays during school holidays and half-term breaks. They support more than 60 children with a vast range of disabilities including autism, cerebral palsy, epilepsy, complex visual and hearing impairments, limited mobility and profound communication difficulties.
We’re proud to fund the PALS playscheme to benefit 29 children with disabilities aged from 6-12-years-old. We’ve received some lovely feedback from Kangaroos Fun Disability Club to let us know that young people enjoyed an action-packed February half-term week playscheme thanks to our funding. The children attending have a range of disabilities and all the activities were planned for their enjoyment and to meet their needs. They were supported by experienced staff as well as young volunteers.
The children enjoyed a trip to The Triangle Leisure Centre where they took part in rock climbing and challenged themselves with a wide range of different climbing activities. They also visited Fishers Farm where they enjoyed the huge soft play and sensory areas, including the large slides and musical instruments, as well as a variety of activities set up at their Ashenground Community Centre throughout the week.
The Mind Clinic
We’re the official fundraising arm of the Royal Alexandra Children’s Hospital (the Alex) and a vital supporter of the neighbouring Trevor Mann Baby Unit (TMBU) in Brighton, funding equipment and services over and above what the NHS is able to fund. This year, we’ve pledged to provide funding for a service called The Mind Clinic to benefit staff at both hospitals.
The Mind Clinic provides counselling services and pastoral care that staff can access in work time or when they are off duty. The purpose of the clinic is to provide a non-performance related counselling service that is freely available to approximately 149 doctors, nurses and non-clinical staff who work at the frontline of the NHS.
Neonatal HSV research project
We’re funding a research project looking at the impact of the Herpes Simplex Virus disease (HSV) in infants younger than 90 days of age. Led by Dr Katy Fidler, Consultant Paediatrician in Infectious Diseases at the Royal Alexandra Children’s Hospital (the Alex) in Brighton, doctors are keen to further research the devastating disease which has a high mortality rate in neonatals.
HSV causes many different types of infections and illnesses and is very common in adults and children, when it can often cause a cold sore. However, neonatal HSV makes a newborn baby very sick. It is a rare but devastating disease and many babies affected can die or will suffer from long-term neurological problems.
The study we’re funding will provide key information about the number of cases in the UK, determine which babies are most at risk and how the risks can be reduced. Their research will also look at how current treatments can be improved to achieve better outcomes for babies who have contracted the disease through their mother during pregnancy or at the time the baby is born.
As of January 2019, we’re pleased to announce that thanks to Rockinghorse, enough funding has been secured to finance the first full research project into neonatal herpes for over 25 years. This surveillance project will monitor the number of infections and mortalities from neonatal herpes in the whole of the UK and Ireland over two years.
The project will be jointly led by Dr Katy Fidler of the Royal Alexandra Children’s Hospital and Professor Paul Heath of St George’s University at London Hospital. Approval of the project has been granted by the British Paediatric Surveillance Unit who will facilitate the research and the team are ready to proceed. In addition to this, there will also be a programme of education and training alongside the project, to be initially trialled in Sussex.
TMBU heartbeat research project
At the time of delivery of a baby, midwives and neonatal staff listen to a baby’s heart to monitor its heart rate to ensure the baby adapts well to a life outside the womb. Listening and detecting a newborn’s heart beat can be difficult, especially if the heart rate is low and the baby is poorly and needs breathing support.
At present, a technique called pulse oximetry is used to detect a baby’s heart rate and oxygen saturation in the blood. The device uses a light sensor which is wrapped around a baby’s hand or foot and can take around a minute to pick up a good signal if the heart rate is normal – although this can be difficult to obtain if the heart rate is very low.
Together with Brighton and Sussex University Hospitals NHS Trust (BSUH), we are funding a research project enabling consultants at the Trevor Mann Baby Unit (TMBU) to test an innovative heart rate monitoring device that will assist midwives and neonatal staff to measure the heart rate during the baby’s first minute of life. The device is based upon Electric Potential Sensing (EPS) technology which will provide a non-invasive, reliable and quick to administer solution to measure the heart rate of a baby.
In March 2019, we heard from Dr Anton, who is leading the heartbeat research at TMBU. Dr Anton and his team are working closely with Dr Elizabeth Rendon-Morales and her team from the Institute of Sensor Technology at the University of Sussex, to develop a novel sensory prototype.
Together, the team have so far completed a comprehensive review about existing devices used to monitor heart rates in babies. They’ve conducted in-depth interviews with doctors, nurses and midwives across TMBU and the labour ward to discuss their opinion on the prototype and pilot scheme on the unit and in the delivery room.
The next steps for the team are to develop the prototype that will detect babies heart beats after birth using the new ECG sensor dubbed the ‘Neo-sense’, followed by a pilot study in stable babies which they are hoping to start in September 2019.